Friday, August 27, 2010

Update on stuff

I went to the neurologist yesterday. Not fun. She did tell me that they found two growths on my thyroid during the ultrasound. I have an appointment with Dr. Usala on September 22nd. 
Then she went on to say that she doesn't know what is causing my problems. She wants to increase my anxiety medicine and give me a sleeping pill. After trying that for a month, she'll send me to Dallas. 
I was not happy. I feel like she's prolonging the pain and passing the buck. But I called my general practitioner and I'm going to see him today at 2:00. I just need someone to talk to about all of this and I need him to fill out my intermittent leave paperwork so I can keep my job. I'm 1 sick day away from getting fired. Plus I'm going to ask him for some pain help. I asked the neurologist for a TENS unit and she said she didn't see why I would need it. How is losing the ability to walk and not being able to feel my spine, stress related? Sure I'll say that the headaches could be stress related, but they aren't normal headaches. They are at the base of my skull and go down my neck and my eyeballs hurt and blinking hurts. I cried a lot yesterday. It's all quite a bit to take in.
Then my neurosurgeon called. I have a CT Angiogram on my neck and brain as well as another spinal MRI on Monday August 30th. He seems to think this is vascular. So I took a vacation day since I have no idea how I'll feel after the angio. 
I see a rheumatologist on the 15th of September.
I spoke with my very good friend at work. She survived the worst type of Thyroid cancer and she lives daily with RA. She explained that I need to find a new normal. I can't keep wishing for a pill to make everything better. I need to ask for help. I need to be my own advocate. I need to stand up for myself. She had numerous doctors tell her that it was all in her head, before finding an ENT that believed it was more than stress and found the cancer.
They have found things. The spinal disorder and the growths on my thyroid. I was perfectly healthy until I had shingles. So I'm not crazy. Yes, my life is stressful even without the health issues, but walking with a cane at 31 just doesn't make sense.
So this is the news. I feel like I'm playing musical specialists. 
SIDE NOTE: The Barbie picture just makes me happy.


  1. Have you seen Dr. Usala before? He is my doctor and I am good friends with both him and his wife. I hope you LOVE Dr. Usala as much as I do. I always tell Randy if I end up in the hospital for ANY reason - call Dr. Usala first!! He is very smart. Call me and I will fill you in more. He is VERY pro-active and looks at every symptom. I would be more than happy to pick you up and go see Dr. Usala with you - we will go in FIRCES to get ANSWERS!!
    YOU are NOT crazy...just CUTE! I hope you get to feeling somewhat better!! MUCH love to you!!

  2. I really hope all these doctors can find out what's going on, and quickly. I can't imagine how hard this has been for you, I hate being in pain, even for just a day or two.

    If you do have some type of Arthritis, I'll have to have my friend e-mail some info to me. She suffers from severe RA and OA and has tried everything to help it. She's been on a gluten free, vegan diet for the past 4 or 5 months and said she's felt better than she has in years.

    Anyway, I really hope you get some relief and answers. Love you!