Tuesday, October 19, 2010
Monday, October 18, 2010
Twenty Wishes
I really like this whole series from Debbie Macomber. This particular book is second to last in the Blossom Street Book series. I can't ever put them down. I thought I'd post this because it encourages the reader to write down 20 wishes. They can be far fetched or near impossible or they can be simple and already planned. I've been working on my list for a while. I still have a few blank spaces, but I think it's a good thing to do. I wrote my list down in my special journal that I carry with me everywhere. It keeps me thinking of something different besides the things I can't change. I may not ever be able to meet all 20 wishes, but it is something to work for. Instead of just getting from this day to the next (which in itself is an accomplishment) you can feel a sense of fulfillment. Just a thought.
Sunday, October 17, 2010
Dealing with Regret
When dealing with illness, it is often natural to look at the past. I'm not sure if everyone is so easily pained by regret, but the regrets in my life have often been crippling to me. I have finally found the strength to deal with these dark and heavy clouds. Time does heal all wounds, but they have to be properly cared for in the mean time or they will fester. My wounds were deep and full of bitterness. During my quiet time I have taken the time to face these ugly things that I can do nothing about and realize God's hand in the midst. I just simply wrote them down. But I only allowed the good to show through. If a thought came up that would breed anger, (which was quite frequent during the process) I wouldn't allow it. After I finished, I read it again and there was such a sense of peace. I can't change the things that happened in the past, but taking a new perspective on it all has helped so much. I am working to keep a positive outlook when going through even the most painful situations, and this allows me to keep from being hurt by things outside of my control. It truly is in how you decide to look at it. I'm looking forward to a future free of regret!
Thursday, October 14, 2010
A break

I am so ready for a break this weekend. I am going to enjoy getting away.
I'm looking forward to seeing so many beautiful handmade things that I get dizzy.
I'm looking forward to eating so much food that I forget about being hungry.
I'm looking forward to the kids having so much fun that they forget to fight.
I'm looking forward to using my cell phone for taking pictures and not for fighting boredom.
I can't wait to spend time with family and having work be only a memory.
It's only one day, but I promise it's the best fun I have all year!
Saturday, October 9, 2010
Nee's Knee
At physical therapy on Friday, my PT and I agreed that it was time for a knee brace. My patella has shifted to the left causing me a great deal of pain. The muscles in my leg, involved with walking are weakened and my knee is taking the brunt of the strain. Avi and I got one last night with a refund we got from switching to All State Insurance. (Yay, Bill McDonald!). Anyway... I have to learn how to walk with this thing. It feels big and cumbersome.
I really want to get the house clean today. I got some work done last night in preparation for the Sabbath meal. But four people make a lot of mess. We will see how much I can get done.
Just wanted to post something.
I really want to get the house clean today. I got some work done last night in preparation for the Sabbath meal. But four people make a lot of mess. We will see how much I can get done.
Just wanted to post something.
Sunday, October 3, 2010
Zee's special Night
Well, Zee had a special night on Friday. He received his own Torah and he had so much fun dancing and singing with the men carrying Torah scrolls. This picture is a little fuzzy, but my hands kept shaking too much. I know this is confusing to much of my family, but I identify with the Torah and following Hashem. I try not to talk about it or make it seem that I think differently since it is an uncomfortable subject for some. But I am not ashamed. I just don't want to pressure anyone to think that I think everyone should do what I do. This is a personal decision for me and my house. I love Hashem with all my heart, soul and mind. I simply don't want Tzipi and Zee to be confused about our faith. Being so isolated in what we believe can be difficult if I don't work very hard to set clear boundaries. Even though I may not agree with everything the local Temple does, they are a wonderful set of human beings that want to obey the Torah and build a community in Amarillo Texas. This is where I am for now and as much as I long to be in the Holy Land, I must be content with where I am.
Please understand that I am totally happy to live in a Christian country and for the most part the Judeo-Christian relationship is one of peace and unity. We worship the same Creator, just in different ways. Different doesn't mean bad. Different is different.
If you have questions, please feel free to ask. I'd rather you know the truth than guess.
Saturday, October 2, 2010
Holly Hobbled

Don't take your good health or good days that you have; for granted.
My left side has been giving me fits for three days now. My knee was so bad on Thursday I couldn't walk. We tried TENS and a cortisone patch, but my knee still feels like someone swapped a 90 year old knee for my 32 year old one. Using an assisting device like a walker or a cane are great in big open spaces, but tight cluttered ones are a nightmare. I need to just get rid of everything. I tripped over my cane this morning and stubbed my left foot. Frustration with a capital F. RRRrrrrr.
Or, I'm supposed to wear shoes at work, but how do I keep my shoe on my left foot, when I can't stand to put pressure on it? I basically drag my darn foot around at work. I'm going to try wearing my ugly sneaker that have fallen apart. They'll stay on.
I'm so tired. I'm not fun to be around. I struggle with coming up with things to say. People are naturally curious and want to know why a 32 year old is using a walker. I don't want to talk about it with people I just meet, cuz I don't want people to think that is all I am.
No!
I love Public Speaking!
I love crocheting (which I can't do cuz my arms hurt so badly)!
I love knitting (ditto)!
I love cooking (ditto)!
I love card making (ditto)
I love helping Zee with homework (this I can do, but I struggle with helping him because my brain and my mouth don't speak the same language anymore)!
I love cuddling with Tzipi (this takes no effort if she's in a good mood).
I love sitting in bed talking with my soul mate. (I am really tired, but I do my best to be coherent).
I love shopping at thrift stores (when I don't have to pay medical bills).
I love to play piano (ouch).
I cry at stupid times. I don't cry when I should. Like on my Birthday. I really wanted to cry when Avi surprised me, but I couldn't. UNTIL an hour later next to the printer back at work. Or when I was in so much pain at the physical therapy appointment, and I cry in the room alone when the PT's getting the TENS unit. Why don't I cry when people are there to help me?
I can't do the things I used to do, but I try not to think about it. I've canceled my latest scrapbook club meeting because of my health.
My work has been affected. I'm slower than I used to be. My daily average used to be 105. Now I'm blessed to get 50 done. My manager insists it won't affect my job, but I'd be lying if I said I wasn't worried.
Oh, and according to my neurologist, there's really nothing wrong.
So that's why it is with great relief that I have an appointment with a specialist in Austin. A normal six month wait was for me a four week wait. God is good! I'm looking forward to hearing some solid answers and no more guessing. This is all the specialist deals with. Neurological problems. Rare disorders.
I'm going to keep up with Physical Therapy and hope this latest flare up passes soon.
Again, remember, if you are feeling good right now, ENJOY IT!
Wednesday, September 29, 2010
I can almost smell it...
Success...
News: Dr. G was in a bicycle accident and fractured his pelvis. Please keep him in your prayers.
His nurse called and said that the growths are just cysts. I will have a follow up in three months. If I feel any swelling or pain, they will get me in as soon as possible. The lymph nodes can only be biopsied with surgery. My T3 levels are higher than they should be, so from what I read, it points towards Hashimoto's ( which my Grandma Smith has) or Hyperthyroidism. (I'll talk to my endocrinologist Nov 1st.)
Linda found a blog with a little boy with the same symptoms as I have. After a long and painful journey, they learned that their son had Demyelination... They found some specialists in Austin that were able to treat him. I tried calling today, but got the receptionists' voice mail. I printed out the new patient packet.
From what I've read Demyelinating Disease is a branch of other diseases like MS and Guillain-Barre Syndrome. So now, I just have to hope I can get in to see the specialists in Austin and if I need a referral I'll be able to get it and my insurance will pay for it all.
Guess what we get to do this weekend? Get Zee glasses! His school nurse says he needs glasses. When he was little (2, maybe...) Medicaid requested that we take him to the ophthalmologist. Way back then the doctor said that he needed glasses, but because he was so little and the vision loss wasn't severe, it would be a waste of time and money since babies can't really take care of them. I would rather not go to Wal-mart, but since he's covered with Medicaid, I guess that would be the easiest place. Of course, poor little Tzipi doesn't understand why she can't get glasses. I'm praying she won't need them just like her Abba.
Tzipi is doing really well in school. Her teacher says she can tell that Tzipi was in Head Start. She doesn't struggle with the same things her classmates struggle with. She bugs her Abba all morning, Can I go to school now? Now? How 'bout now?
Zee is doing really well. His work is getting harder and harder, but he's keeping up. He struggled with keeping quiet in class, but we've talked about it, and he's working hard to control his mouth. He's working to earn a Poptropica Hoodie. He has to apply himself and keep his mouth shut and obey his father without a snarky attitude. We will see how long it takes to earn it.
Well, that's all I can think of right now.
News: Dr. G was in a bicycle accident and fractured his pelvis. Please keep him in your prayers.
His nurse called and said that the growths are just cysts. I will have a follow up in three months. If I feel any swelling or pain, they will get me in as soon as possible. The lymph nodes can only be biopsied with surgery. My T3 levels are higher than they should be, so from what I read, it points towards Hashimoto's ( which my Grandma Smith has) or Hyperthyroidism. (I'll talk to my endocrinologist Nov 1st.)
Linda found a blog with a little boy with the same symptoms as I have. After a long and painful journey, they learned that their son had Demyelination... They found some specialists in Austin that were able to treat him. I tried calling today, but got the receptionists' voice mail. I printed out the new patient packet.
From what I've read Demyelinating Disease is a branch of other diseases like MS and Guillain-Barre Syndrome. So now, I just have to hope I can get in to see the specialists in Austin and if I need a referral I'll be able to get it and my insurance will pay for it all.
Guess what we get to do this weekend? Get Zee glasses! His school nurse says he needs glasses. When he was little (2, maybe...) Medicaid requested that we take him to the ophthalmologist. Way back then the doctor said that he needed glasses, but because he was so little and the vision loss wasn't severe, it would be a waste of time and money since babies can't really take care of them. I would rather not go to Wal-mart, but since he's covered with Medicaid, I guess that would be the easiest place. Of course, poor little Tzipi doesn't understand why she can't get glasses. I'm praying she won't need them just like her Abba.
Tzipi is doing really well in school. Her teacher says she can tell that Tzipi was in Head Start. She doesn't struggle with the same things her classmates struggle with. She bugs her Abba all morning, Can I go to school now? Now? How 'bout now?
Zee is doing really well. His work is getting harder and harder, but he's keeping up. He struggled with keeping quiet in class, but we've talked about it, and he's working hard to control his mouth. He's working to earn a Poptropica Hoodie. He has to apply himself and keep his mouth shut and obey his father without a snarky attitude. We will see how long it takes to earn it.
Well, that's all I can think of right now.
Tuesday, September 28, 2010
Update
I don't know when I will hear about the thyroid biopsy now. When I called the ENT on Monday, the receptionist said that Dr. G had been injured and was unsure when he would be able to let me know of the results. So I guess I'll keep waiting.
Sunday, September 26, 2010
Why I love Sukkot

There are many spiritual reasons that G-d mandated Sukkot, but I'm not going to go into that. I just wanted to post that this year was pleasant and I'm so happy that we got to stop and remember how precious and connected this life is.
Labels:
Amarillo Texas,
mitzvot,
sukkah,
Sukkot,
Torah
Thursday, September 23, 2010
Dr. Usala
Well, Tina came and took me to Dr. Usala! I had so much fun getting to chat with her. We were there for a very long time. But time=quality with doctors. Dr. Usala was very thorough and very nice. I appreciated his time.
1. there is something wrong.
2.we don't know what it is.
3.we may need a spinal tap (lumbar puncture) to figure it out.
4. it looks like guillain-barre syndrome.
Side note: Andy Griffith has GBS.
http://www.mayoclinic.com/health/guillain-barre-syndrome/DS00413
I have choked on spit quite a bit. In fact just two weeks ago I choked so bad, that my manager almost sent me home. This is the only weird thing that I just thought was me. Maybe it's not.
I'm sorry this isn't longer, but we're going to Lubbock this morning, so I have loads to do.
Thank you so much for taking your day to be with me Tina. I enjoyed our time together so very much! Hope we can get together again soon!
1. there is something wrong.
2.we don't know what it is.
3.we may need a spinal tap (lumbar puncture) to figure it out.
4. it looks like guillain-barre syndrome.
Side note: Andy Griffith has GBS.
http://www.mayoclinic.com/health/guillain-barre-syndrome/DS00413
I have choked on spit quite a bit. In fact just two weeks ago I choked so bad, that my manager almost sent me home. This is the only weird thing that I just thought was me. Maybe it's not.
I'm sorry this isn't longer, but we're going to Lubbock this morning, so I have loads to do.
Thank you so much for taking your day to be with me Tina. I enjoyed our time together so very much! Hope we can get together again soon!
Saturday, September 18, 2010
A friend in need...

My friend Kathy has offered to go with me for the fine needle biopsy. She survived the worst type of thyroid cancer. I go to her for a reality check when I get too freaked out. She said that she would have loved to have someone come with her, she went through it alone. So Tuesday we will set off from work and go to the Hospital. I will be awake and will see the long tiny needle as they poke it in my neck. She will be there to keep me calm and distracted. We called the hospital and will allow her in to the procedure with me. It should take an hour. I'm not sure if they will biopsy the thyroid and lymph glands, but they might. I will post as soon as I know something more.
Friday, September 17, 2010
Update
I saw Dr. Plata on Wednesday. I thought it was silly that I was seeing a rheumatologist, but I actually like him very much. He's a good doctor. Knows A LOT! If you ever need to see a rheumatologist, I highly recommend seeing him. He said, I DO NOT have fibromayalgia. I have a drop foot and I need to wear an orthotic brace on my foot so I don't trip and fall. He said that it definitely seems neurological in nature and said that he could not rule out MS. Lupus and Vasculitis were two other options. He took tons of blood and a urine sample and will look over all of my previous tests to see if he can catch something the others missed, or order a more specific test. He was curious why I haven't had a lumbar puncture, but with my syrinx in my spine, he said they might not be able to do it. He would look into it. He's funny and smart and a terrific listener. I am glad I went.
Then yesterday I saw my ENT, Dr. Guttenplan. He said that my lymph nodes are bigger than they should be. He said he palpitated and couldn't feel any nodules, but we agreed that we didn't want to take the wait and see route. I'm having a fine needle biopsy on Tuesday morning. A bit freaked out, but I'm getting pretty good at the whole needle thing. My son got his ears cleaned (a little after my appointment), so the kids were pretty thrilled to see me. It's a good feeling to see that my kids are liked. The whole office told me how much they like my kids, even Dr. G! We got caught in that terrible storm and the kids were soaking wet. I cuddled with Tzipi while Zee got his ears cleaned. It took us an hour to get home with all the flooding. The kids were pretty freaked out, and I kept praying that our Escort would make it. (I was in the Taurus with the kids, but Avi was behind us in the little faithful wagon.) We made it fine, but man were we glad to be in the warm house!
Oh and a miracle happened yesterday. Proof that G-d takes care of the little things too! I was at my Toastmasters' club and the actual fun stuff was over and we were having a small business meeting. I'm standing listening to our Treasurer speak. And before I realize what is happening, I have tears streaming down my face, as the entire club voted to pay my way to the district conference in October in Lubbock. I've been planning to go, but was trusting G-d for the 75 dollars. I haven't said a thing to my club about struggling to pay. I wasn't able to go to the Amarillo conference last fall as it was 100.00. I'm so excited. G-d is so wonderful. Toastmasters is one of my favorite things, and it's not a big thing in the grand scheme of things, but He knows.
Then yesterday I saw my ENT, Dr. Guttenplan. He said that my lymph nodes are bigger than they should be. He said he palpitated and couldn't feel any nodules, but we agreed that we didn't want to take the wait and see route. I'm having a fine needle biopsy on Tuesday morning. A bit freaked out, but I'm getting pretty good at the whole needle thing. My son got his ears cleaned (a little after my appointment), so the kids were pretty thrilled to see me. It's a good feeling to see that my kids are liked. The whole office told me how much they like my kids, even Dr. G! We got caught in that terrible storm and the kids were soaking wet. I cuddled with Tzipi while Zee got his ears cleaned. It took us an hour to get home with all the flooding. The kids were pretty freaked out, and I kept praying that our Escort would make it. (I was in the Taurus with the kids, but Avi was behind us in the little faithful wagon.) We made it fine, but man were we glad to be in the warm house!
Oh and a miracle happened yesterday. Proof that G-d takes care of the little things too! I was at my Toastmasters' club and the actual fun stuff was over and we were having a small business meeting. I'm standing listening to our Treasurer speak. And before I realize what is happening, I have tears streaming down my face, as the entire club voted to pay my way to the district conference in October in Lubbock. I've been planning to go, but was trusting G-d for the 75 dollars. I haven't said a thing to my club about struggling to pay. I wasn't able to go to the Amarillo conference last fall as it was 100.00. I'm so excited. G-d is so wonderful. Toastmasters is one of my favorite things, and it's not a big thing in the grand scheme of things, but He knows.
Wednesday, September 15, 2010
Stress and other things...

It's been a stressful week. Trying to juggle everything is rough. I work hard at stopping and doing something fun, even if it's only 15 minutes. But the issues that cause the stress are still there. I typed in "stress" in the Google Images (where I get my pictures) and they all pretty much looked like this woman. Hand on their head, eyes closed and look of anguish on their faces. Humans are funny that way. I catch myself doing the same thing.
I go to the rheumatologist today and see my ENT tomorrow. My neurosurgeon was the one that told me I needed to see the ENT. If I need surgery, Dr Guttenplan will be the one to do it. I've trusted him with my son, so it's only natural I would go see him for my thyroid. I'm really nervous about that appointment. (But Zee has an appointment at almost the same time, so we may see each other there, which will make it a little better.) I go to Physical Therapy on Friday morning. I'm hoping we are able to do a bit more. My PT found that my sacroiliac ligament was messed up, so we worked on that. Then he worked on my neck a bit. I'm really sore, but I'm used to pain.
I do get to go to a fun class on Thursday night. I signed up for a free class at the library to make a cute doll for Tzipi. Free and close are good things.
Work, money, kids, homework, doctors, bills, family, friends, pain, will be there and there isn't anything I can do about it anyway. G-d will make it work out. He always does.
Saturday, September 11, 2010
Daydreaming in bed...

I'm not sure what I'm dealing with. It started out feeling like allergies, and now my lungs hurt and my whole body hurts if I sneeze or cough. So... I've been in bed reading. I checked out this awesome book! Looks kind of crazy, but it's inspiring.

One of my favorite things about Indiana Jones, was his father's journal. Leather bound and full of adventure. Well this book teaches you how to make your own.



Thursday, September 9, 2010
Thursday, September 2, 2010
Yay!
Last year I almost got hit by a car on my birthday. This year I need to go to work early, so I know the traffic will be light. Phew!
I get to be a judge at a Toastmaster's contest for Tall Tales speeches. I know my cubicle is all decorated and I have a yummy treat with my name on it. I'm glad that I have the next 5 days off. It will be nice to be away from work for a little while. Especially since we get to go to Three Falls Cove! Yay! Today is going to be a great day.
I get to be a judge at a Toastmaster's contest for Tall Tales speeches. I know my cubicle is all decorated and I have a yummy treat with my name on it. I'm glad that I have the next 5 days off. It will be nice to be away from work for a little while. Especially since we get to go to Three Falls Cove! Yay! Today is going to be a great day.
Tuesday, August 31, 2010
Pat on the back
Work had an interesting feel to it today. We were told to make containers of some sort at the beginning of August. We had small squares of paper where we would write something nice about a co-worker and place it in their respective box. I made my box out of a tissue box and played with decoupage.
Well then today, we got an email telling us that we had until 5:00 today to finish with our "pats-on-the-back". People all over the floor were stuffing papers into everyone's boxes all day long. Then there's the feeling that someone put a note in your box and you feel obligated to return the favor. Thankfully, everyone that put a note in my box (that I saw) had one from me already in theirs. I got the feeling right away that it was about how many you gave, as opposed to how many got the most. I'll hopefully know for sure tomorrow (as we were not allowed to look at the notes all month long.)
It was a fun feeling, kind of like a holiday... even though it's just bits of paper and ink. I look forward to seeing the notes finally.
I remembered we did something similar to this a couple years ago, but it kind of backfired. Back then they said that it had to be work only related and job specific. Well only a few team leads got the bulk of the praise. Us newbies rarely helped anyone, but needed all the help. They didn't keep it so strict this time and it worked out much better. I think everyone got SOMETHING in their boxes this time.
Stay tuned for more...
Monday, August 30, 2010
HOT AND COLD
Wow. What an experience. Leelee took me to the hospital this morning for two tests.
The CT Angiogram was a "wham-bam-thank-you-ma'am" experience. They gave me an IV and then I laid down. The donut that goes around you rotates really really fast. It was a strange feeling. Then they quickly (and I mean quickly) inject this dye that makes you feel like you have an instant fever. That made me feel really yucky. Then I got the chills. Talk about roller coaster. Then I just stayed prone for about 5 minutes until the feeling wore off. The whole shabang took about 10 minutes from start to finish. I hurt and had pins and needles all over. Thankfully they had a wheelchair, so I wheeled to the waiting room for the second test. (At the very end my brain felt really really cold. Weird huh?)
The MRI was uneventful, but long. 45 minutes for one test. It was the lumbar region of my spine. The tech lady gave me a nice warm blanket and I got all cozy in the 7 foot long MRI machine. For those of us that hate confined spaces, I just recommend closing your eyes. If you can't see how tight the space is, it's better. I day dreamed about Tzipi's Barbie Birthday party, Pancakes with lots of butter and syrup, a shopping spree with actual money, and Three Falls Cove (not necessarily in that order). I had to fight panic once maybe twice. The muscle spasms forced me to stay a bit longer because I twitched during one of the pictures. So the tech had to redo the last picture which added 4 minutes to the thing.
I see an Ophthalmologist on the 1st of September. Hopefully I'll be able to get my eye allergy medicine prescription while I'm there because my eyes are so itchy. I'm going to check on my right eye which has possible retinal tearing.
There are times (like on the CAT SCAN bed) when I just want to run away from all of this and quit trying to solve this dang mystery, but I can't. I have to have my thyroid cared for, I need to have my back cared for, and I can't afford to lose the ability to walk. The pain I can handle. But I have to take care of my family.
At least I have my birthday to look forward to, Three Falls cove, my 10th anniversary, and Sukkot! This lady was 32 at the time of this picture. I don't know her name. She had a whole litter of kids, but lived during the "dust bowl days". She was blessed with many children, but she had a hard life. I have it easy. I had a vacation day that I could take, so I could mentally recuperate from this medical stuff. She never had that. She never had a tech help her walk or lay a warm, clean blanket on her. I must keep my mind on the things that really matter. I wish I could go back in time and help her take care of that little one so she could take a nap.
I love my family so very much. Without you I have no idea where I would be. Thank you!
The CT Angiogram was a "wham-bam-thank-you-ma'am" experience. They gave me an IV and then I laid down. The donut that goes around you rotates really really fast. It was a strange feeling. Then they quickly (and I mean quickly) inject this dye that makes you feel like you have an instant fever. That made me feel really yucky. Then I got the chills. Talk about roller coaster. Then I just stayed prone for about 5 minutes until the feeling wore off. The whole shabang took about 10 minutes from start to finish. I hurt and had pins and needles all over. Thankfully they had a wheelchair, so I wheeled to the waiting room for the second test. (At the very end my brain felt really really cold. Weird huh?)
The MRI was uneventful, but long. 45 minutes for one test. It was the lumbar region of my spine. The tech lady gave me a nice warm blanket and I got all cozy in the 7 foot long MRI machine. For those of us that hate confined spaces, I just recommend closing your eyes. If you can't see how tight the space is, it's better. I day dreamed about Tzipi's Barbie Birthday party, Pancakes with lots of butter and syrup, a shopping spree with actual money, and Three Falls Cove (not necessarily in that order). I had to fight panic once maybe twice. The muscle spasms forced me to stay a bit longer because I twitched during one of the pictures. So the tech had to redo the last picture which added 4 minutes to the thing.
I see an Ophthalmologist on the 1st of September. Hopefully I'll be able to get my eye allergy medicine prescription while I'm there because my eyes are so itchy. I'm going to check on my right eye which has possible retinal tearing.
There are times (like on the CAT SCAN bed) when I just want to run away from all of this and quit trying to solve this dang mystery, but I can't. I have to have my thyroid cared for, I need to have my back cared for, and I can't afford to lose the ability to walk. The pain I can handle. But I have to take care of my family.
At least I have my birthday to look forward to, Three Falls cove, my 10th anniversary, and Sukkot! This lady was 32 at the time of this picture. I don't know her name. She had a whole litter of kids, but lived during the "dust bowl days". She was blessed with many children, but she had a hard life. I have it easy. I had a vacation day that I could take, so I could mentally recuperate from this medical stuff. She never had that. She never had a tech help her walk or lay a warm, clean blanket on her. I must keep my mind on the things that really matter. I wish I could go back in time and help her take care of that little one so she could take a nap.
I love my family so very much. Without you I have no idea where I would be. Thank you!
Sunday, August 29, 2010
Something fun!
I so rarely get to shop at Target that it's quite a treat. I got to go run an errand and it was so much fun. Take joy in the little things!
Friday, August 27, 2010
Update on stuff

I went to the neurologist yesterday. Not fun. She did tell me that they found two growths on my thyroid during the ultrasound. I have an appointment with Dr. Usala on September 22nd.
Then she went on to say that she doesn't know what is causing my problems. She wants to increase my anxiety medicine and give me a sleeping pill. After trying that for a month, she'll send me to Dallas.
I was not happy. I feel like she's prolonging the pain and passing the buck. But I called my general practitioner and I'm going to see him today at 2:00. I just need someone to talk to about all of this and I need him to fill out my intermittent leave paperwork so I can keep my job. I'm 1 sick day away from getting fired. Plus I'm going to ask him for some pain help. I asked the neurologist for a TENS unit and she said she didn't see why I would need it. How is losing the ability to walk and not being able to feel my spine, stress related? Sure I'll say that the headaches could be stress related, but they aren't normal headaches. They are at the base of my skull and go down my neck and my eyeballs hurt and blinking hurts. I cried a lot yesterday. It's all quite a bit to take in.
Then my neurosurgeon called. I have a CT Angiogram on my neck and brain as well as another spinal MRI on Monday August 30th. He seems to think this is vascular. So I took a vacation day since I have no idea how I'll feel after the angio.
I see a rheumatologist on the 15th of September.
I spoke with my very good friend at work. She survived the worst type of Thyroid cancer and she lives daily with RA. She explained that I need to find a new normal. I can't keep wishing for a pill to make everything better. I need to ask for help. I need to be my own advocate. I need to stand up for myself. She had numerous doctors tell her that it was all in her head, before finding an ENT that believed it was more than stress and found the cancer.
They have found things. The spinal disorder and the growths on my thyroid. I was perfectly healthy until I had shingles. So I'm not crazy. Yes, my life is stressful even without the health issues, but walking with a cane at 31 just doesn't make sense.
So this is the news. I feel like I'm playing musical specialists.
SIDE NOTE: The Barbie picture just makes me happy.
Wednesday, August 25, 2010
We love you!
We love these two boys. They mean the world to us. I'm trusting that I will get to see them today and this horrible nightmare will be over.
Monday, August 23, 2010
First Day of School 2010 Wolflin Elementary
Mrs. Camp Third Grade |
Mrs. Houston Pre-K |
They both really like their teachers. Zee said that they don't have enough breaks and the students have to be quiet all the time (oh the horror!)
They were both ready for school. I pray that they learn good lessons and show a good example of Torah.
I am very proud of both of my smiley beautiful children!
Hans
When things are ruff and you need to be "in the now", hug Hans. He will kiss you and hug you and tell you that everything is OK right now. Don't think about yesterday or tomorrow. Don't worry about bills or drama or pain. Just know that right now, you are in the middle of a wonderful puppy love session and that is all that matters.
Thank you for sharing him, Leelee and Kevin! Love you!
This is my new focus...to have Hans moments throughout my day!
Saturday, August 21, 2010
Friday, August 20, 2010
Such a sad, mad, bad day...
Well an update: Saw the neurosurgeon today. It was frustrating. Waiting and waiting and waiting just to be told that the spinal disorder I have isn't causing my symptoms. I burst out crying right then and there.
(poor doctor)
6 months of agony and he doesn't know what is wrong. So he said that we'd do a CT Angiogram of my neck and brain to see if the vessels are allowing blood to flow properly. Maybe it's vascular. Maybe it's neurological. It's certainly not the syringomyelia. It's too minimal to be causing all the trouble. When I saw the MRI for myself, I could tell. It's like a small soda straw. Not like the huge masses on the websites. The neurosurgeon said that I would need to have an MRI every six months to keep checking to make sure the syrinx doesn't get bigger.
(This isn't my MRI... just kind of looks like it.)

So I will get a referral to the hospital for the CT scan (really not looking forward to that at all) and another Spinal MRI. I will hear from my neurologist on Thursday about my Thyroid ultra sound and I guess she'll talk to me about my next steps. I'm hoping she'll give me an RX for a TENS machine. I'd like to at least try using it and see if it helps with the pain. The neurosurgeon DID fill out the paperwork so I can have a handicap placard. YAY for not having to walk a mile to work!!! Woohoo! But I've been crying all day. I expect way too much out of life. I get let down way too often. No one said life would be easy, but golly I've had my share of stuff. I was hoping my adult life would be "normal". I'm still waiting...


Tuesday, August 17, 2010
Sunday, August 15, 2010
Please, please, please!!!
http://www.foodnetwork.com/the-next-food-network-star/index.html
You all know how much I love Indian food. I don't have cable or satellite TV, but I love going to the Food Network website and watching videos. I've been hoping for a long time that they would bring a chef that would feed my love for the Spicier things in life. My timing could not have been better. They are at the finale for "The Next Food Network Star" (down to 3) and guess who is the crowd favorite? A sweet lady named Aarti Sequeira from Dubai. YAY! She has the cutest website called "Aarti Paarti" and she mixes Indian and American cuisine. I'm so happy. I voted 10 times today and she has the most votes. I soooooo hope she wins. She already has an internet show, so she knows how to entertain an audience. Woohoo! I just need some buttermilk now so I can make her BAKED Samosas. Yum! I don't know when the actual show airs, so if you find out that she wins, please post on Facebook! Thank you!
http://www.aartipaarti.com/
You all know how much I love Indian food. I don't have cable or satellite TV, but I love going to the Food Network website and watching videos. I've been hoping for a long time that they would bring a chef that would feed my love for the Spicier things in life. My timing could not have been better. They are at the finale for "The Next Food Network Star" (down to 3) and guess who is the crowd favorite? A sweet lady named Aarti Sequeira from Dubai. YAY! She has the cutest website called "Aarti Paarti" and she mixes Indian and American cuisine. I'm so happy. I voted 10 times today and she has the most votes. I soooooo hope she wins. She already has an internet show, so she knows how to entertain an audience. Woohoo! I just need some buttermilk now so I can make her BAKED Samosas. Yum! I don't know when the actual show airs, so if you find out that she wins, please post on Facebook! Thank you!
http://www.aartipaarti.com/
Friday, August 13, 2010
Happy Birthday Sweetheart!
I added this picture because this has always been Avi's favorite holiday. He likes it even more than birthdays. Sukkot is only a few weeks away!
Avi, Happy birthday love. I hope this year gets better. You have been a dear and I know this hasn't been a great year, but having you by my side makes it all worth while. May the best of this year be the worst of next year! To many many more... the wife.
Wednesday, August 11, 2010
To Azariah...
I tried so hard to stay awake. I had the phone right next to my head. I am so sorry I missed your call. I love you so much. Hopefully things will be quiet and I can call you this morning. Have a great day and don't worry about home, we miss you and we love you and we want you to have a great time at Grandpa and Grandma's house.
Monday, August 9, 2010
Back in the Saddle again...

That's right folks... after a rough night's sleep and the alarm failing to go off and being awakened by my lovely husband, I got ready in a daze and made it off to work. I've been in a fog all day, but I got work done. I even went to the bank to get some bank stuff done. Sore, tired, but glad to be back to 'normal'.
Tomorrow after work I go to the hospital for the ultra sound on my neck. I'm sure it will be quick and I'll get to go home earlier than normal on a Tuesday.
I'm listening to a very pleasant book. "An Irish Country Village" by Patrick Taylor. It's like "All Creatures Great and Small", only it's with people instead of animals. I'm enjoying it very much. I didn't want to leave my desk for dread of missing anything in this book. Like Ireland meets Grey's Anatomy or Boston MED.


Thursday, August 5, 2010
It pays to go to the best!

I was frustrated with my dentist trying to fix all the problems in my mouth and not really know much about my mouth. Thankfully, I found someone who really knows a cleft palate when they see one. Amarillo Oral and Maxiofacial Center was great. I had surgery in their office, in a big long hall with lots of rooms. I didn't feel a thing. They were sweet and extremely knowledgeable. Everything was state of the art. Dr. Smith and Dr. Graves were wonderful. I would highly recommend them to anyone who has to have a procedure that is out of the ordinary.
I'm still in pain and it hurts to talk, but I know it's going to be great once everything heals. I'm glad I have 4 days to get over this so I can go back to work. Thank God for sick days. This isn't how I expected to use them, but I'm glad I had them.
As you could probably guess, I'm bored again. Stuck in my room trying to stay absolutely still. I'm hoping that I feel better tomorrow so I can make a few cards while I'm lying in bed. We'll see.
If you know of something fun I can watch or do on the internet, please let me know.
Bored and Sore in Amarillo.
Wednesday, August 4, 2010
When it rains it pours...

Well, guess what I get to do tomorrow? Have my wisdom teeth taken out. I'm in so much pain, even WITH two Lortab in my system, that I don't have much choice in the matter. So pray for me tomorrow at 9:00. I will be having two very annoying teeth removed. I have to have it done. Do I want to have surgery tomorrow? No. But it's either that or hire a hitman to kill me. Just kidding... The pain truly is THAT bad though.
Monday, August 2, 2010
Infinitesimal...
No matter how tiny I may feel, I have to remember I am in HIS hands.
I went to my neurologist today. Let's sum it up with... the answers created more questions.
When they did the MRI for my neck looking for lesions, they found a mass on/near my thyroid. I'll go in on the 10th for an ultra sound to see if it really is a mass. And maybe it's something to worry about.
Then my thoracic spinal MRI showed spinal fluid cavity. I go to a neurosurgeon for a diagnosis or more tests on the 10th too. For liability purposes my neurologist wouldn't/couldn't answer any of my questions regarding the cavity. Google is way too much power in the hands of the lay person. Let's just say, I would have been happier with a diagnosis of MS. Pretty lame huh?
I would say I'm staying strong and positive, but that would be a big fat lie. I want to crawl in bed for a few days and cry. Not that it would make it better. It just feels like the normal thing to do. I'm tired of being tough. I'm tired of being strong.
I did do the b-12 shot and didn't feel a thing. That's a high note on an otherwise crappy day.
PS. I just wish I was half as cute as that little critter in the above picture. Oh well.
I went to my neurologist today. Let's sum it up with... the answers created more questions.
When they did the MRI for my neck looking for lesions, they found a mass on/near my thyroid. I'll go in on the 10th for an ultra sound to see if it really is a mass. And maybe it's something to worry about.
Then my thoracic spinal MRI showed spinal fluid cavity. I go to a neurosurgeon for a diagnosis or more tests on the 10th too. For liability purposes my neurologist wouldn't/couldn't answer any of my questions regarding the cavity. Google is way too much power in the hands of the lay person. Let's just say, I would have been happier with a diagnosis of MS. Pretty lame huh?
I would say I'm staying strong and positive, but that would be a big fat lie. I want to crawl in bed for a few days and cry. Not that it would make it better. It just feels like the normal thing to do. I'm tired of being tough. I'm tired of being strong.
I did do the b-12 shot and didn't feel a thing. That's a high note on an otherwise crappy day.
PS. I just wish I was half as cute as that little critter in the above picture. Oh well.
Sunday, August 1, 2010
Life on Sunday...
As a kid, I never dared say this phrase. As an adult and in the current state of things, I'm so bored. I already spent all my energy trying to find the best deal for school supplies. Why does a third grader need a 14 dollar 3" 3 ring binder? Especially when I could buy 3 1" binders for 50 cents! Arrrggghhhh.And last year, when I scrimped on a cheapo binder, it fell apart and Zee never told me till school was over. I did get 9 cent pencils and 19 cent highlighters. Office Depot had some good sales, but the best deals of the day were at Walgreens. I'm sure Walmart has some good things, but I don't shop there unless it's before 8am. I still need way more than I'd like to admit, but I'm half-way there. Two kids in school! ARG!
I go to Dr. Saulog's tomorrow and hopefully find out what all the tests say. I should start my B-12 shots tomorrow too.
My friend Corina came over and worked so hard on my house. It's so nice. I still have to work on my own room, but considering how much work we did on the rest of the house, I'm thrilled. I can't thank her enough.
Well, I guess I will find something lame to watch on Hulu.
I go to Dr. Saulog's tomorrow and hopefully find out what all the tests say. I should start my B-12 shots tomorrow too.
My friend Corina came over and worked so hard on my house. It's so nice. I still have to work on my own room, but considering how much work we did on the rest of the house, I'm thrilled. I can't thank her enough.
Well, I guess I will find something lame to watch on Hulu.
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